There are strict laws which safeguard participants’ privacy at every stage.
ASPIRING is run by a team at the University of Edinburgh who take care to protect participants’ information. The information is processed and protected by this team. The team includes medical, computing and administrative staff, all of whom have a duty of confidentiality to participants.
Information about participants is stored securely in a study database on servers, which are securely hosted by the University of Edinburgh. The database will be compliant with the relevant regulations and the Sponsor’s policies. Only trained and approved members of the study team will be given password-protected access to the study database. We comply with the GDPR and Data Protection Act 2018 and Caldicott principles when sharing or processing your data within the NHS and other organisations involved in the study.
The University of Edinburgh/NHS Lothian is the data controller.